About this trial

This study seeks to understand the effects of adult day programs on older adults, especially those with dementia, and their caregivers. A prospective cohort study will be conducted in the Canadian provinces of Alberta, British Columbia, Manitoba, and Ontario. Participants will be (1) older adults with dementia who attend a day program, and their caregivers, and (2) older adults with dementia in the community who do not attend a day program, and their caregivers. The objectives are to (1) evaluate the effects of day programs on attendee and caregiver outcomes, and (2) compare day program use patterns, attendee and caregiver social identities, day program characteristics, and day program outcomes between the 4 provinces, and (3) to explore what attendee and caregiver social identities and day program characteristics are associated with study outcomes, and with day program attendance/non-attendance.

Eligibility criteria

Qualifiers

Older adults (65+ years) with a diagnosis of dementia, who live in the community, and either attend an adult day program (cohort 1), or receive continuing care in the community with an initial RAI-HC assessment completed (cohort 2)

Primary caregiver (i.e., most involved with and informed about the care) of an eligible older adult

Disqualifiers

Older adults with or without dementia who do not receive any community-based continuing care service

Day program attendees or community care recipients who do not have a diagnosis of dementia or who are younger than 65 years

Secondary caregivers

Trial design

Treatments tested in this trial

  • Adult day program use
  • Other community care (non-attendees)

Treatment groups

3,000 Participants
are divided into 2 treatment groups

Locations

4
Edmonton and Calgary Health Zones Edmonton & CalgaryAlberta, Canada
Interior Health Region MultipleBritish Columbia, Canada
Winnipeg Regional Health Authority WinnipegManitoba, Canada
York Region MultipleOntario, Canada

Sponsors and collaborators

York University

Lead sponsor

Carswell Family Foundation

Collaborator

Alzheimer Society of York Region

Collaborator