Health Trials

About this trial

CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).

Eligibility criteria

Qualifiers

Currently has a confirmed diagnosis of DMD/BMD based on genetic testing, muscle biopsy, or clinical diagnosis.

Currently has a confirmed diagnosis of carrier status for DMD/BMD based on genetic testing.

Parent/guardian (for minor participants) or participant gives informed consent and/or assent as required by local regulations.

Is age 4 weeks or older at the time of consent.

Disqualifiers

Is a foster child or ward of the state.

Is a prisoner.

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

5,000 Participants
are grouped into 2 trial groups

Locations

10
Arkansas
Arkansas Children's Hospital72202, Little Rock United States
California
CureDuchenne92660, Newport Beach United States
Children's Hospital of Orange County92868, Orange United States
Georgia
Rare Disease Research30329, Atlanta United States

Sponsors and collaborators

CureDuchenne

Lead sponsor

Source ClinicalTrials.gov