Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorMedstar Health Research Institute

About this trial

Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.

Eligibility criteria

Qualifiers

SMA diagnosis, age greater than or equal to 18 years

Disqualifiers

Deceased

Trial design

Treatments tested in this trial

  • Telephone Interview

Treatment groups

No treatment groups listed

Locations

1
MedStar Health Research Institute20010, WashintonDistrict of Columbia, United States

Sponsors and collaborators

Medstar Health Research Institute

Lead sponsor