Diamond Blackfan Anemia Registry (DBAR)
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorNorthwell Health
About this trial
The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).
Eligibility criteria
Qualifiers
Normochromic, usually macrocytic and occasionally normocytic anemia developing early in childhood
Reticulocytopenia
Normocellular bone marrow with a selective deficiency of red cell precursors
Normal or slightly decreased leukocyte count
Disqualifiers
Any subject identified as having another bone marrow failure syndrome (eg. Fanconi anemia, dyskeratosis congenita, Shwachman Diamond syndrome, etc.) will be excluded.
Trial design
Treatments tested in this trial
- Not listed
Trial groups
No trial groups listed
Locations
1Cohen Children's Medical Center of NY11040, New Hyde ParkNew York, United States
Sponsors and collaborators
Northwell Health
Lead sponsor
Source ClinicalTrials.gov