[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100065664":3},{"organization":4,"armGroups":7,"interventions":7,"overallOfficials":8,"centralContacts":17,"locations":23,"responsibleParty":44,"collaborators":7,"id":46,"slug":7,"hasResults":47,"nctId":48,"briefTitle":49,"officialTitle":49,"acronym":50,"eligibilityCriteria":51,"healthyVolunteers":47,"sex":52,"minAge":7,"maxAge":7,"enrollmentInfo":53,"targetDuration":7,"studyType":56,"phases":7,"briefSummary":57,"conditions":58,"keywords":61,"overallStatus":26,"whyStopped":7,"lastUpdateSubmitDate":63,"lastUpdatePostDateStruct":64,"startDateStruct":67,"completionDateStruct":69,"leadSponsor":71,"locationsCount":72},{"fullName":5,"class":6},"Northwell Health","OTHER",null,[9,13],{"name":10,"affiliation":11,"role":12},"Adrianna Vlachos, MD","Cohen Children's Medical Center of NY\u002FFeinstein Institutute for Medical Research","PRINCIPAL_INVESTIGATOR",{"name":14,"affiliation":15,"role":16},"Jeffrey M Lipton, MD, PhD","Cohen Children's Medical Center of NY\u002FFeinstein Institute for Medical Research","STUDY_CHAIR",[18],{"name":19,"role":20,"phone":21,"phoneExt":7,"email":22},"Eva Atsidaftos, MA","CONTACT","718-470-5523","eatsidaf@northwell.edu",[24],{"facility":25,"status":26,"city":27,"state":28,"zip":29,"country":30,"cosmosGeoPoint":31,"geoPoint":36,"contacts":37},"Cohen Children's Medical Center of NY","RECRUITING","New Hyde Park","New York","11040","United States",{"type":32,"coordinates":33},"Point",[34,35],-73.68791,40.7351,{"lat":35,"lon":34},[38,40,42],{"name":19,"role":20,"phone":39,"phoneExt":7,"email":22},"518-562-1504",{"name":41,"role":12,"phone":7,"phoneExt":7,"email":7},"Jeffey M Lipton, MD, PhD",{"name":10,"role":43,"phone":7,"phoneExt":7,"email":7},"SUB_INVESTIGATOR",{"type":12,"investigatorFullName":10,"investigatorTitle":45,"investigatorAffiliation":5,"oldNameTitle":7,"oldOrganization":7},"Director","100065664",false,"NCT00106015","Diamond Blackfan Anemia Registry (DBAR)","DBAR","Inclusion Criteria:\n\n* Patients must meet the diagnostic criteria for DBA which include the following:\n\n  1. Normochromic, usually macrocytic and occasionally normocytic anemia developing early in childhood\n  2. Reticulocytopenia\n  3. Normocellular bone marrow with a selective deficiency of red cell precursors\n  4. Normal or slightly decreased leukocyte count\n  5. Normal or often increased platelet count\n  6. Or, a confirmed mutation in one of the identified DBA genes\n\nExclusion Criteria:\n\n* Any subject identified as having another bone marrow failure syndrome (eg. Fanconi anemia, dyskeratosis congenita, Shwachman Diamond syndrome, etc.) will be excluded.","ALL",{"count":54,"type":55},900,"ESTIMATED","OBSERVATIONAL","The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).",[59,60],"Anemia","Blood Disease",[62],"inherited pure red cell aplasia","2026-04-13",{"date":65,"type":66},"2026-04-16","ACTUAL",{"date":68,"type":66},"2004-09",{"date":70,"type":55},"2030-04",{"name":5,"class":6},1]