Endometriosis Self-Management Strategies

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexFemale
Age16+
SponsorWageningen University and Research

About this trial

The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: \[How\] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?

Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.

Eligibility criteria

Qualifiers

living in a European country

16 years or older

having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis

fluent in a language spoken by the research team

Disqualifiers

not meeting one of the inclusion criteria

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

150 Participants
are grouped into 1 trial group

Locations

1
Leeuwenborch6706 KN, Wageningen Netherlands

Sponsors and collaborators

Wageningen University and Research

Lead sponsor

University of Edinburgh

Collaborator