About this trial

This is a prospective, observational, online study of people diagnosed with ALS, MND or PLS referred to as HAROS (Healing ALS Registry Observational Study). Participants will enter information into an online ALS registry once per month, including their ALSFRS-R data, certain other symptoms, dietary intake, supplements, medications and other therapies, both conventional and integrative. Participants will also enter the hours spent on optional self-study and free online education. The investigators will assess the effectiveness of various therapies and education by measuring physical outcomes.

Eligibility criteria

Qualifiers

Diagnosed with ALS, MND or PLS

Disqualifiers

Smokers

Trial design

Treatments tested in this trial

  • Education about treatment options
  • Dietary Supplements: Vitamins, Minerals, Herbs, etc.
  • Meditation, Prayer, Talk Therapy, Affirmations, Journaling, etc.
  • Diet, various diets will be observed
  • Exercise, physical therapy, occupational therapy, speech therapy, sauna, EMS, massage and other therapies
  • ALS medications and other medications
  • Physical and emotional support

Treatment groups

1,000 Participants
are divided into 4 treatment groups

Locations

1
Virtual84098, Park CityUtah, United States

Sponsors and collaborators

Healing Advocates Registry and Ministry

Lead sponsor