Multicenter, Interdisciplinary National VEXAS Registry With Accompanying Biomaterial Collection

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorTechnische Universität Dresden

About this trial

The aim is rapid collection of real-life data on the epidemiology, treatment and disease course in patients with VEXAS syndrome during routine clinical practice and collect biomaterials to evaluate genotype-phenotype associations, determine optimal treatment schedule, identify diagnostic features and biomarkers

Eligibility criteria

Qualifiers

Patients with established or suspected (clinical and hematological criteria) VEXAS Syndrome

Age ≥18 years

Signed informed consent form

Disqualifiers

patients who are not in a position to understand the nature and scope of participation in this register

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

No trial groups listed

Locations

17
Universitätsklinikum Aachen Aachen Germany
Klinikum Chemnitz gGmbH Chemnitz Germany
Universitätsklinikum Carl Gustav Carus01307, Dresden Germany
Universitätsklinikum Düsseldorf Düsseldorf Germany

Sponsors and collaborators

Technische Universität Dresden

Lead sponsor

Bristol-Myers Squibb

Collaborator

University Hospital Munich

Collaborator