[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100239721":3},{"organization":4,"armGroups":7,"interventions":8,"overallOfficials":12,"centralContacts":16,"locations":22,"responsibleParty":37,"collaborators":7,"id":39,"slug":7,"hasResults":40,"nctId":41,"briefTitle":42,"officialTitle":42,"acronym":43,"eligibilityCriteria":44,"healthyVolunteers":40,"sex":45,"minAge":7,"maxAge":7,"enrollmentInfo":46,"targetDuration":49,"studyType":50,"phases":7,"briefSummary":51,"conditions":52,"keywords":7,"overallStatus":24,"whyStopped":7,"lastUpdateSubmitDate":69,"lastUpdatePostDateStruct":70,"startDateStruct":73,"completionDateStruct":75,"leadSponsor":77,"locationsCount":78},{"fullName":5,"class":6},"Myotonic Dystrophy Foundation","OTHER",null,[9],{"type":6,"name":10,"description":11,"armGroupLabels":7,"otherNames":7},"Patient-entered data","This registry provides patient-entered data for future clinical trial and study use.",[13],{"name":14,"affiliation":5,"role":15},"Tanya Stevenson, EdD, MPH","STUDY_CHAIR",[17],{"name":18,"role":19,"phone":20,"phoneExt":7,"email":21},"Sofia Olmos, PhD","CONTACT","415-800-7777","coordinator@myotonicregistry.org",[23],{"facility":5,"status":24,"city":25,"state":26,"zip":27,"country":28,"cosmosGeoPoint":29,"geoPoint":34,"contacts":35},"RECRUITING","Oakland","California","94612","United States",{"type":30,"coordinates":31},"Point",[32,33],-122.2708,37.80437,{"lat":33,"lon":32},[36],{"name":18,"role":19,"phone":20,"phoneExt":7,"email":21},{"type":38,"investigatorFullName":7,"investigatorTitle":7,"investigatorAffiliation":7,"oldNameTitle":7,"oldOrganization":7},"SPONSOR","100239721",false,"NCT02398786","Myotonic Dystrophy Family Registry","MDFR","Inclusion Criteria:\n\n* Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed by clinical exam or genetic test)\n\nExclusion Criteria:\n\n* Not diagnosed with DM, unaffected family members","ALL",{"count":47,"type":48},3500,"ESTIMATED","5 Years","OBSERVATIONAL","The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.",[53,54,55,56,57,58,59,60,61,62,63,64,65,66,67,68],"Myotonic Dystrophy","Congenital Myotonic Dystrophy","Myotonic Dystrophy 1","Myotonic Dystrophy 2","Dystrophia Myotonica","Dystrophia Myotonica 1","Dystrophia Myotonica 2","Myotonia Dystrophica","Myotonic Dystrophy, Congenital","Myotonic Myopathy, Proximal","PROMM (Proximal Myotonic Myopathy)","Proximal Myotonic Myopathy","Steinert Disease","Steinert Myotonic Dystrophy","Steinert's Disease","Myotonia Atrophica","2024-11-19",{"date":71,"type":72},"2024-11-21","ACTUAL",{"date":74,"type":7},"2013-02",{"date":76,"type":48},"2030-02",{"name":5,"class":6},1]