Neurofibromatosis (NF) Registry Portal
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorThe Children's Tumor Foundation
About this trial
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
Eligibility criteria
Qualifiers
Diagnosed with NF1
Diagnosed with NF2
Diagnosed with Schwannomatosis
Disqualifiers
Failure to complete account registration
Trial design
Treatments tested in this trial
- Not listed
Trial groups
20,000 Participants
are grouped into 3 trial groupsLocations
1Children's Tumor Fundation10017, New YorkNew York, United States
Sponsors and collaborators
The Children's Tumor Foundation
Lead sponsor
Source ClinicalTrials.gov