About this trial

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.

Eligibility criteria

Qualifiers

Must be deceased

< 18 years old at time of death

Diagnosed with any oncologic condition

History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild

Disqualifiers

None

Trial design

Treatments tested in this trial

  • Non-Interventional Study

Treatment groups

2,425 Participants
are divided into 2 treatment groups

Locations

13
California
Kaiser Permanente-Oakland94611, Oakland United States
Delaware
Alfred I duPont Hospital for Children19803, Wilmington United States
Florida
Memorial Regional Hospital/Joe DiMaggio Children's Hospital33021, Hollywood United States
Nemours Children's Clinic-Jacksonville32207, Jacksonville United States

Sponsors and collaborators

Children's Oncology Group

Lead sponsor