[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100328228":3},{"organization":4,"outcomesModule":7,"designInfo":32,"detailedDescription":35,"studyPopulation":36,"armGroups":31,"interventions":31,"overallOfficials":37,"centralContacts":61,"locations":69,"responsibleParty":488,"collaborators":491,"id":545,"slug":31,"hasResults":546,"nctId":547,"briefTitle":548,"officialTitle":549,"acronym":550,"eligibilityCriteria":551,"healthyVolunteers":546,"sex":552,"minAge":31,"maxAge":31,"enrollmentInfo":553,"targetDuration":556,"studyType":557,"phases":31,"briefSummary":558,"conditions":559,"keywords":562,"overallStatus":72,"whyStopped":31,"lastUpdateSubmitDate":564,"lastUpdatePostDateStruct":565,"startDateStruct":568,"completionDateStruct":570,"leadSponsor":572,"locationsCount":573},{"fullName":5,"class":6},"University of Ulm","OTHER",{"primaryOutcomes":8,"secondaryOutcomes":13,"otherOutcomes":31},[9],{"measure":10,"description":11,"timeFrame":12},"Age at death","patients are followed regularly, age at death (years) will be documented","after 20 years",[14,18,22,25,28],{"measure":15,"description":16,"timeFrame":17},"change in somatic comorbidities under standard treatment","standardized physical examination, laboratory and instrument based tests","yearly for 50 years",{"measure":19,"description":20,"timeFrame":21},"genotype-phenotype correlation for patients with familial lipodystrophy","molecular genetic results will be compared to results from standardized physical examination, laboratory and instrument based tests","every 5 years for 50 years",{"measure":23,"description":24,"timeFrame":17},"age at onset of metabolic complications","metabolic complications will be assessed via standardized physical examination, laboratory and instrument based tests",{"measure":26,"description":27,"timeFrame":17},"age at onset orthopedic complications","orthopedic complications will be assessed via standardized physical examination, laboratory and instrument based tests",{"measure":29,"description":30,"timeFrame":17},"age at onset neuromuscular complications","neuromuscular complications will be assessed via standardized physical examination, laboratory and instrument based tests",null,{"allocation":31,"interventionModel":31,"interventionModelDescription":31,"primaryPurpose":31,"observationalModel":33,"timePerspective":34,"maskingInfo":31},"CASE_ONLY","PROSPECTIVE","As lipodystrophies are rare diseases subdivided into yet rarer sub-groups, research in this field requires international co-operation.\n\nThe European Consortium of Lipodystrophy (ECLip) consists of an association of European experts in the field of lipodystrophy. It has set up a Registry Board to implement a registry for patients with lipodystrophy using the Open Source Software OSSE (Open Source Registry System for Rare Diseases in the EU), which is a web based platform focused on a federated approach that allows to perform distributed searches which are designed to comply data protection requirements and preserve data sovereignty. To ensure data protection, medical and identifying data will be stored on two different servers both run by the Institute for Epidemiology and Medical Biometry of the University of Ulm.\n\nMedical centers from all over the world where patients are treated with lipodystrophy are invited to join the ECLip Registry and to become ECLip Registry members. Upon registration, they can enter patient data after they have obtained local ethic committee permission and the patient in question has given written consent to this. Data entry is done at the individual locations via a web-based user interface. Identifying data are recorded directly into the identity management system. Communication between the identity management and the OSSE registry happens via a web browser.\n\nThe aim of the patient registry is to compile data on the natural history of each different sub-group of lipodystrophies, their comorbidities, treatment options used and medical and quality of life out-come for the patients. For this, the following data retrieved from regular patient visits are collected:\n\n* Precise diagnosis including moleculargenetic results\n* Clinical presentation and comorbidities\n* Laboratory changes and results of diagnostic procedures\n* Natural course of the disease including age at onset of disease and comorbidities\n* Family history\n\nResearch within this registry can be performed by participating clinicians\u002Fresearchers and third parties after a research proposal has be accepted by the responsible committee of the ECLip. The registry aims to answer the following questions\n\n* new insights into the pathophysiology of lipodystrophy\n* improve therapeutic options for the patients\n* compile information material for patients, families and relevant professionals","all patients with lipodystrophy not due to anti-retroviral drugs presenting to a participating center might be entered",[38,41,45,47,49,52,55,58],{"name":39,"affiliation":5,"role":40},"Martin Wabitsch, Prof. Dr.","STUDY_CHAIR",{"name":42,"affiliation":43,"role":44},"David Araujo-Vilar, Prof. Dr.","Santiago de Compostela University","PRINCIPAL_INVESTIGATOR",{"name":46,"affiliation":5,"role":44},"Julia von Schnurbein, Dr.",{"name":48,"affiliation":5,"role":44},"Gabriele Nagel, Prof.",{"name":50,"affiliation":51,"role":44},"Camille Vatier, Dr.","Pierre et Marie Curie School of Medicine (Paris)",{"name":53,"affiliation":54,"role":44},"Marie-Christine Vantyghem, Prof.","Lille University",{"name":56,"affiliation":57,"role":44},"Giovanni Ceccarini, Dr.","Endocrine Unit, University Hospital of Pisa",{"name":59,"affiliation":60,"role":44},"David Savage, Prof.","University of Cambridge Metabolic Research Laboratories",[62,67],{"name":46,"role":63,"phone":64,"phoneExt":65,"email":66},"CONTACT","0049 731 500","57401","julia.schnurbein@uniklinik-ulm.de",{"name":39,"role":63,"phone":64,"phoneExt":65,"email":68},"martin.wabitsch@uniklinik-ulm.de",[70,89,106,118,131,145,161,177,192,209,218,232,251,263,280,292,311,328,345,359,373,387,405,420,434,448,461,473],{"facility":71,"status":72,"city":73,"state":31,"zip":31,"country":74,"countryCode":75,"cosmosGeoPoint":76,"geoPoint":81,"contacts":82},"Medical University of Vienna","RECRUITING","Vienna","Austria","AT",{"type":77,"coordinates":78},"Point",[79,80],16.37208,48.20849,{"lat":80,"lon":79},[83,86],{"name":84,"role":63,"phone":31,"phoneExt":31,"email":85},"Thomas Scherer, M.D.","thomas.scherer@meduniwien.ac.at",{"name":87,"role":63,"phone":31,"phoneExt":31,"email":88},"Marianna Beghini, M.D.","marianna.beghini@meduniwien.ac.at",{"facility":54,"status":72,"city":90,"state":31,"zip":31,"country":91,"countryCode":92,"cosmosGeoPoint":93,"geoPoint":97,"contacts":98},"Lille","France","FR",{"type":77,"coordinates":94},[95,96],3.05512,50.63391,{"lat":96,"lon":95},[99,101,104],{"name":53,"role":63,"phone":31,"phoneExt":31,"email":100},"marie-christine.vantyghem@chru-lille.fr",{"name":102,"role":103,"phone":31,"phoneExt":31,"email":31},"Géraldine Lavergne","SUB_INVESTIGATOR",{"name":105,"role":103,"phone":31,"phoneExt":31,"email":31},"Anne-Sophie Paranthoen",{"facility":107,"status":72,"city":108,"state":31,"zip":31,"country":91,"countryCode":92,"cosmosGeoPoint":109,"geoPoint":113,"contacts":114},"AP-HP Nord Université de Paris, Hôpital Universitaire Robert-Debré","Paris",{"type":77,"coordinates":110},[111,112],2.3488,48.85341,{"lat":112,"lon":111},[115],{"name":116,"role":63,"phone":31,"phoneExt":31,"email":117},"Elise Bismuth, Dr.","elise.bismuth@aphp.fr",{"facility":119,"status":72,"city":108,"state":31,"zip":31,"country":91,"countryCode":92,"cosmosGeoPoint":120,"geoPoint":122,"contacts":123},"Pierre et Marie Curie School of Medicine, Sorbonne University",{"type":77,"coordinates":121},[111,112],{"lat":112,"lon":111},[124,126,129],{"name":50,"role":63,"phone":31,"phoneExt":31,"email":125},"camille.vatier@aphp.fr",{"name":127,"role":63,"phone":31,"phoneExt":31,"email":128},"Corinne Vigouroux, Prof. Dr.","corinne.vigouroux@inserm.fr",{"name":130,"role":103,"phone":31,"phoneExt":31,"email":31},"Isabelle Jeru, Dr",{"facility":132,"status":72,"city":133,"state":31,"zip":31,"country":134,"countryCode":135,"cosmosGeoPoint":136,"geoPoint":140,"contacts":141},"Kinder-und Jugendkrankenhaus AUF DER BULT","Hanover","Germany","DE",{"type":77,"coordinates":137},[138,139],9.73322,52.37052,{"lat":139,"lon":138},[142],{"name":143,"role":63,"phone":31,"phoneExt":31,"email":144},"Jantje Weiskorn, Dr.","weiskorn@hka.de",{"facility":146,"status":72,"city":147,"state":31,"zip":31,"country":134,"countryCode":135,"cosmosGeoPoint":148,"geoPoint":152,"contacts":153},"Department of Internal Medicine (Endocrinology and Nephrology), University of Leipzig","Leipzig",{"type":77,"coordinates":149},[150,151],12.37129,51.33962,{"lat":151,"lon":150},[154,157,159],{"name":155,"role":63,"phone":31,"phoneExt":31,"email":156},"Konstanze Miehle, Dr.","Konstanze.Miehle@medizin.uni-leipzig.de",{"name":158,"role":44,"phone":31,"phoneExt":31,"email":31},"Michael Stumvoll, Prof. Dr.",{"name":160,"role":103,"phone":31,"phoneExt":31,"email":31},"Mathias Faßhauer, Prof. Dr.",{"facility":162,"status":72,"city":163,"state":31,"zip":164,"country":134,"countryCode":135,"cosmosGeoPoint":165,"geoPoint":169,"contacts":170},"Med. Klinik B für Gastroenterologie und Hepatologie, Universitätsklinikum Münster","Münster","48149",{"type":77,"coordinates":166},[167,168],7.62571,51.96236,{"lat":168,"lon":167},[171,174],{"name":172,"role":63,"phone":31,"phoneExt":31,"email":173},"Hartmut Schmidt, Prof.","hepar@ukmuenster.de",{"name":175,"role":63,"phone":31,"phoneExt":31,"email":176},"Elena Vorona, Dr. med.","Elena.Vorona@ukmuenster.de",{"facility":178,"status":72,"city":179,"state":31,"zip":180,"country":134,"countryCode":135,"cosmosGeoPoint":181,"geoPoint":185,"contacts":186},"Dept for Pediatrics and Adolescent Medicine, University of Ulm: Interdisciplinary obesity clinic","Ulm","89075",{"type":77,"coordinates":182},[183,184],9.99155,48.39841,{"lat":184,"lon":183},[187,188,190,191],{"name":39,"role":63,"phone":64,"phoneExt":65,"email":68},{"name":189,"role":63,"phone":64,"phoneExt":65,"email":66},"Julia von Schnurbein, Dr. med.",{"name":39,"role":44,"phone":31,"phoneExt":31,"email":31},{"name":46,"role":44,"phone":31,"phoneExt":31,"email":31},{"facility":193,"status":72,"city":194,"state":31,"zip":31,"country":195,"countryCode":196,"cosmosGeoPoint":197,"geoPoint":201,"contacts":202},"National and Kapodistrian University of Athens","Athens","Greece","GR",{"type":77,"coordinates":198},[199,200],23.72784,37.98376,{"lat":200,"lon":199},[203,206],{"name":204,"role":63,"phone":31,"phoneExt":31,"email":205},"Alexandraki, Prof.","alexandrakik@gmail.com",{"name":207,"role":63,"phone":31,"phoneExt":31,"email":208},"Spyroglou, Prof.","aspyroglou@yahoo.com",{"facility":210,"status":72,"city":194,"state":31,"zip":31,"country":195,"countryCode":196,"cosmosGeoPoint":211,"geoPoint":213,"contacts":214},"Second Department of Internal Medicine, Medical School, National and Kapodistrian University of Athens, Attikon University Hospital",{"type":77,"coordinates":212},[199,200],{"lat":200,"lon":199},[215],{"name":216,"role":63,"phone":31,"phoneExt":31,"email":217},"Vaia Lambadiari, Prof.","vlambadiari@gmail.com",{"facility":219,"status":72,"city":220,"state":31,"zip":31,"country":221,"countryCode":222,"cosmosGeoPoint":223,"geoPoint":227,"contacts":228},"University of Szeged, Department of Internal Medicine","Szeged","Hungary","HU",{"type":77,"coordinates":224},[225,226],20.14824,46.253,{"lat":226,"lon":225},[229],{"name":230,"role":63,"phone":31,"phoneExt":31,"email":231},"Eva Csajbok, Dr.","ecsajbok@yahoo.com",{"facility":233,"status":72,"city":234,"state":31,"zip":31,"country":235,"countryCode":236,"cosmosGeoPoint":237,"geoPoint":241,"contacts":242},"Endocrinology Unit, Department of Clinical and Medical science, S. Orsola-Malpighi Hospital , University of Bologna","Bologna","Italy","IT",{"type":77,"coordinates":238},[239,240],11.33875,44.49381,{"lat":240,"lon":239},[243,246,249],{"name":244,"role":63,"phone":31,"phoneExt":31,"email":245},"Alessandra Gambineri, Ass. Prof.","alessandra.gambineri@aosp.bo.it",{"name":247,"role":63,"phone":31,"phoneExt":31,"email":248},"Giovanna Lattanzi","lattanzi@area.bo.cnr.it",{"name":250,"role":103,"phone":31,"phoneExt":31,"email":31},"Carolina Cecchetti",{"facility":252,"status":72,"city":253,"state":31,"zip":31,"country":235,"countryCode":236,"cosmosGeoPoint":254,"geoPoint":258,"contacts":259},"Policlinic University Hospital of Milan","Milan",{"type":77,"coordinates":255},[256,257],9.18951,45.46427,{"lat":257,"lon":256},[260],{"name":261,"role":63,"phone":31,"phoneExt":31,"email":262},"Giulia Rodari, Dr.","giulia.rodari@policlinico.mi.it",{"facility":264,"status":72,"city":265,"state":31,"zip":31,"country":235,"countryCode":236,"cosmosGeoPoint":266,"geoPoint":270,"contacts":271},"Universita del piemonte Orientale","Novara",{"type":77,"coordinates":267},[268,269],8.62118,45.44694,{"lat":269,"lon":268},[272,275,278],{"name":273,"role":63,"phone":31,"phoneExt":31,"email":274},"Flavia Prodam, Dr","flavia.prodam@med.uniupo.it",{"name":276,"role":63,"phone":31,"phoneExt":31,"email":277},"Gianluca Aimaretti, Prof","gianluca.aimaretti@med.uniupo.it",{"name":279,"role":103,"phone":31,"phoneExt":31,"email":31},"Tommaso Daffara, Dr",{"facility":281,"status":72,"city":282,"state":31,"zip":31,"country":235,"countryCode":236,"cosmosGeoPoint":283,"geoPoint":287,"contacts":288},"Palermo University","Palermo",{"type":77,"coordinates":284},[285,286],13.3636,38.1166,{"lat":286,"lon":285},[289],{"name":290,"role":63,"phone":31,"phoneExt":31,"email":291},"Silvio Buscemi, Prof.","silvio.buscemi@unipa.it",{"facility":293,"status":72,"city":294,"state":31,"zip":31,"country":235,"countryCode":236,"cosmosGeoPoint":295,"geoPoint":299,"contacts":300},"Endocrine Unit of University Hospital of Pisa","Pisa",{"type":77,"coordinates":296},[297,298],10.4036,43.70853,{"lat":298,"lon":297},[301,304,309],{"name":302,"role":63,"phone":31,"phoneExt":31,"email":303},"Giovanni Ceccarini, Prof. Dr.","giovanni.ceccarini@unipi.it",{"name":305,"role":63,"phone":306,"phoneExt":307,"email":308},"Ferruccio Santini, Prof. Dr.","+39 050 544","723","ferruccio.santini@med.unipi.it",{"name":310,"role":103,"phone":31,"phoneExt":31,"email":31},"Federica Ferrari, Dott.ssa",{"facility":312,"status":72,"city":313,"state":31,"zip":31,"country":235,"countryCode":236,"cosmosGeoPoint":314,"geoPoint":318,"contacts":319},"Tor Vergata University - Policlinico of Tor Vergata","Roma",{"type":77,"coordinates":315},[316,317],11.10642,44.99364,{"lat":317,"lon":316},[320,323,326],{"name":321,"role":63,"phone":31,"phoneExt":31,"email":322},"Giusepe Novelli, Prof","novelli@med.uniroma2.it",{"name":324,"role":63,"phone":31,"phoneExt":31,"email":325},"Maria Rosaria D'Apice, Dr","d.apice@med.uniroma2.it",{"name":327,"role":103,"phone":31,"phoneExt":31,"email":31},"Paolo Sbraccia, Prof",{"facility":329,"status":72,"city":330,"state":31,"zip":31,"country":331,"countryCode":332,"cosmosGeoPoint":333,"geoPoint":337,"contacts":338},"Academic Medical Center, University of Amsterdam","Amsterdam","Netherlands","NL",{"type":77,"coordinates":334},[335,336],4.88969,52.37403,{"lat":336,"lon":335},[339,342],{"name":340,"role":63,"phone":31,"phoneExt":31,"email":341},"Kleinendorst Lotte, Dr.","l.kleinendorst@amsterdamumc.nl",{"name":343,"role":63,"phone":31,"phoneExt":31,"email":344},"Marjoleine Broekema, Dr.","m.broekema@amsterdamumc.nl",{"facility":346,"status":72,"city":347,"state":31,"zip":31,"country":348,"countryCode":349,"cosmosGeoPoint":350,"geoPoint":354,"contacts":355},"Abel Salazar Biomedical Sciences Institute - University of Porto","Porto","Portugal","PT",{"type":77,"coordinates":351},[352,353],-8.61097,41.1485,{"lat":353,"lon":352},[356],{"name":357,"role":63,"phone":31,"phoneExt":31,"email":358},"Ermelinda Santos Silva, Prof. Dra","u20868@chporto.min-saude.pt",{"facility":360,"status":72,"city":361,"state":31,"zip":31,"country":362,"countryCode":363,"cosmosGeoPoint":364,"geoPoint":368,"contacts":369},"C. I. Parhon National Institute of Endocrinology, Bucharest, Romania","Bucharest","Romania","RO",{"type":77,"coordinates":365},[366,367],26.10626,44.43225,{"lat":367,"lon":366},[370],{"name":371,"role":63,"phone":31,"phoneExt":31,"email":372},"Iuliana Gherlan","iuliana.gherlan77@gmail.com",{"facility":374,"status":72,"city":375,"state":31,"zip":31,"country":376,"countryCode":377,"cosmosGeoPoint":378,"geoPoint":382,"contacts":383},"Endocrinology Research Centre","Moscow","Russia","RU",{"type":77,"coordinates":379},[380,381],37.61781,55.75204,{"lat":381,"lon":380},[384],{"name":385,"role":63,"phone":31,"phoneExt":31,"email":386},"Marina Shestakova, MD","shestakova.mv@gmail.com",{"facility":388,"status":72,"city":389,"state":31,"zip":31,"country":390,"countryCode":391,"cosmosGeoPoint":392,"geoPoint":396,"contacts":397},"University Medical Center Ljubljana - Clinical Institute of Medical Genetics","Ljubljana","Slovenia","SI",{"type":77,"coordinates":393},[394,395],14.50513,46.05108,{"lat":395,"lon":394},[398,403],{"name":399,"role":63,"phone":400,"phoneExt":401,"email":402},"Karin Writzl, Dr.","003861522","6031","karinwritzl@gmail.com",{"name":404,"role":103,"phone":31,"phoneExt":31,"email":31},"Iztok Stotl, Dr",{"facility":43,"status":72,"city":406,"state":31,"zip":31,"country":407,"countryCode":408,"cosmosGeoPoint":409,"geoPoint":413,"contacts":414},"Santiago de Compostela","Spain","ES",{"type":77,"coordinates":410},[411,412],-8.54569,42.88052,{"lat":412,"lon":411},[415,417],{"name":42,"role":63,"phone":31,"phoneExt":31,"email":416},"david.araujo@usc.es",{"name":418,"role":63,"phone":31,"phoneExt":31,"email":419},"Antía Fernández Pombo","antia.fernandez.pombo@rai.usc.es",{"facility":421,"status":72,"city":422,"state":31,"zip":31,"country":423,"countryCode":424,"cosmosGeoPoint":425,"geoPoint":429,"contacts":430},"Stoffwechselzentrum friendlydocs","Sankt Gallen","Switzerland","CH",{"type":77,"coordinates":426},[427,428],9.37477,47.42391,{"lat":428,"lon":427},[431],{"name":432,"role":63,"phone":31,"phoneExt":31,"email":433},"Katrin Heldt, MD","katrin.heldt@friendlydocs.ch",{"facility":435,"status":72,"city":436,"state":31,"zip":31,"country":437,"countryCode":438,"cosmosGeoPoint":439,"geoPoint":443,"contacts":444},"National Taiwan University Hospital","Taipei","Taiwan","TW",{"type":77,"coordinates":440},[441,442],121.52639,25.05306,{"lat":442,"lon":441},[445],{"name":446,"role":63,"phone":31,"phoneExt":31,"email":447},"Ni-Chung Lee, Dr.","ncleentu@ntu.edu.tw",{"facility":449,"status":72,"city":450,"state":31,"zip":31,"country":451,"countryCode":31,"cosmosGeoPoint":452,"geoPoint":456,"contacts":457},"Marmara University, Pediatric Endocrinology and Diabetes","Istanbul","Turkey (Türkiye)",{"type":77,"coordinates":453},[454,455],28.94966,41.01384,{"lat":455,"lon":454},[458],{"name":459,"role":63,"phone":31,"phoneExt":31,"email":460},"Belma Haliloglu, Prof.","belmahaliloglu26@hotmail.com",{"facility":462,"status":72,"city":463,"state":31,"zip":31,"country":451,"countryCode":31,"cosmosGeoPoint":464,"geoPoint":468,"contacts":469},"Dokuz Eylul University School of Medicine","Izmir",{"type":77,"coordinates":465},[466,467],27.13838,38.41273,{"lat":467,"lon":466},[470],{"name":471,"role":63,"phone":31,"phoneExt":31,"email":472},"Baris Akinci","barisakincimd@gmail.com",{"facility":60,"status":72,"city":474,"state":31,"zip":31,"country":475,"countryCode":476,"cosmosGeoPoint":477,"geoPoint":481,"contacts":482},"Cambridge","United Kingdom","UK",{"type":77,"coordinates":478},[479,480],0.11667,52.2,{"lat":480,"lon":479},[483,485],{"name":59,"role":63,"phone":31,"phoneExt":31,"email":484},"dbs23@medschl.cam.ac.uk",{"name":486,"role":63,"phone":31,"phoneExt":31,"email":487},"Claire Adams","ca337@medschl.cam.ac.uk",{"type":44,"investigatorFullName":489,"investigatorTitle":490,"investigatorAffiliation":5,"oldNameTitle":31,"oldOrganization":31},"Julia von Schnurbein","Prinicipal Investigator",[492,494,496,498,501,503,505,507,509,511,513,515,517,519,521,523,525,526,527,530,531,533,535,537,539,541,543],{"name":493,"class":6},"Sorbonne University",{"name":495,"class":6},"University Hospital, Lille",{"name":497,"class":6},"University of Cambridge",{"name":499,"class":500},"Endocrinology Research Centre, Moscow","OTHER_GOV",{"name":502,"class":6},"University of Leipzig",{"name":504,"class":6},"University of Amsterdam",{"name":506,"class":6},"Dokuz Eylul University",{"name":508,"class":6},"IRCCS Azienda Ospedaliero-Universitaria di Bologna",{"name":510,"class":6},"University of Rome Tor Vergata",{"name":512,"class":6},"University of Pisa",{"name":514,"class":6},"University of Santiago de Compostela",{"name":516,"class":6},"Università degli Studi del Piemonte Orientale Amedeo Avogadro",{"name":518,"class":6},"University Hospital Muenster",{"name":520,"class":6},"Szeged University",{"name":522,"class":6},"Centro Hospitalar do Porto",{"name":524,"class":6},"University Medical Centre Ljubljana",{"name":71,"class":6},{"name":193,"class":6},{"name":528,"class":529},"Stoffwechselzentrum St. Gallen","UNKNOWN",{"name":435,"class":6},{"name":532,"class":6},"Marmara University",{"name":534,"class":6},"University of Palermo",{"name":536,"class":6},"Attikon Hospital",{"name":538,"class":6},"Kinderkrankenhaus auf der Bult",{"name":540,"class":6},"Hopital Universitaire Robert-Debre",{"name":542,"class":6},"University of Milan",{"name":544,"class":6},"C.I. Parhon National Institute of Endocrinology","100328228",false,"NCT03553420","Registry for Patients With Lipodystrophy","Osse Registry for Patients With Lipodystrophy Run by the European Consortium of Lipodystrophies (ECLip)","ECLip Registry","Inclusion Criteria:\n\n* lipodystrophy\n\nExclusion Criteria:\n\n* lipodystrophy due to anti-retroviral drugs","ALL",{"count":554,"type":555},5000,"ESTIMATED","50 Years","OBSERVATIONAL","Given the lack of knowledge on lipodystrophies, the medical and social responsibility for the persons affected by it calls for the monitoring of the progression over long periods of time. Sensible clinical and basic research into rare diseases such as lipodystrophy is only possible in multi-location networks with sufficient case numbers. Also, reliable information on the incidence of certain manifestation patterns, health status, etc. is of utmost importance for health care and health policy in this rare disease.\n\nTherefore, the European Consortium of Lipodystrophies (ECLip), an association of European experts on lipodystrophy, has launched a registry (OSSE) for lipodystrophies which is committed to help to improve the research conditions by consolidating this kind of information in a registry.",[560,561],"Lipodystrophy Acquired","Lipodystrophy Congenital",[563],"lipodystrophy","2025-11-24",{"date":566,"type":567},"2025-12-02","ACTUAL",{"date":569,"type":567},"2017-12-16",{"date":571,"type":555},"2068-01",{"name":5,"class":6},28]