Self-Efficacy Enhancement Using a Multicomponent Support Group for Caregivers of Children With DMD/SMA
Trial statusNot yet recruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
AgeNot listed
SponsorAga Khan University
The goal of this clinical trial is to learn if providing a multicomponent intervention improves the confidence of caregivers of children with DMD or SMA. The main question it aims to answer is:
Does this intervention increase their self-efficacy scores over 8 weeks time?
Researchers will compare scores at baseline (pre intervention) and after 8 weeks (post intervention)
Primary caregiver of a child diagnosed with SMA or DMD.
Enrolled in the Treat-NMD registry- Pakistan.
Access to a smart phone with internet connectivity.
Caregivers who are currently participating in another support group intervention.
Caregivers who are unable to understand the language of communication (Urdu)
Aga Khan University
Lead sponsor